Baby Charlie Gard Won’t Go Home
Baby Charlie Gard’s parents have been denied the request to take their 10-month old baby home to die. The baby boy is one of only 16 children in the world to have mitochondrial depletion syndrome. This condition causes progressive muscle weakness and brain damage. Doctors have said he cannot see, hear, move, cry or swallow. Baby Gard has been receiving specialized treatment at Great Ormond Street Hospital since last October.
Baby Charlie Gard Given Promises From Parents
The parents, Chris Gard and Connie Yates, have criticized doctors after their request to bring their son home to die was denied. Yates said, “We’ve promised our little boy every single day that we would take him home, because that is a promise we thought we could keep. We were told he has to die in that hospital.” His parents they say have “begged” administrators to “give us this weekend” to allow his family to say goodbye. A spokesperson for Great Ormond Street Hospital said, “As with all of our patients, we are not able to and nor will we discuss these specific details of care. This is a very distressing situation for Charlie’s parents and all the staff involved and our focus remains with them.”
Last Tuesday the parents lost their final legal appeal to take him to the US for treatment. Judges at the European Court of Human Rights concluded that further treatment would “continue to cause Charlie significant harm,” in line with advice from specialists at the hospital. Charlie’s parents received more than one million dollars through a crowdfunding site. The money was to be used for experimental treatment in the US. Ms Yates has already indicated the money would go towards a charity for the syndrome since her son did not get his chance.
The hospital has lengthened the time before they pull the plug on his life support by adding hours. Many people are hoping the hospital will give the parents one more consideration – to allow them to take Baby Gard home where he can spend his last hours.